The Burden of Rare Diseases Over 70 million Indians suffer from rare diseases, the treatment cost of which runs into tens of lakhs every year, lifelong. Yet we don’t have a national policy to support patients such as Dhruti P from Mysuru. Read More
Meet Manish Gore, FSGS/Alport Syndrome Warrior, and Rare Disease Advocate for ORDI talk on why awareness and early intervention is important Read More
Dr Ann Agnus Mathew, Pediatric Neurologists speak on current scenario of Rare Genetic Diseases Read More
ORD Organize for Rare Disease India “Race for7”/ 23rd Feb 20k, 6:30am, stJoseph’s Indian High School Read More
KIRTIDA OZA, Co-Founder Director Sjogren’s India talks about need for Rare Disease awareness Read More
