Race for 7 is an annual mass “Awareness Run/Walk/Ride” being organized on “World Rare Disease Day” on 28th February 2021 at 6.30 am. https://registration.racefor7.com/
India has recently completed a six-month pilot project sequencing the genomes of individuals within the nation. Could genome sequencing present a boon to combating rare diseases? Despite the infrequency the term implies, an estimated one in twenty Indians suffer from illnesses that fall under the classification of rare diseases. This translates to seventy million of the world’s 350 […]
Shri. Tejasvi Surya, Member of parliament; Dr. K. Sudhakar, Minister of Medical Education of Karnataka; Smt. Shwetha R Prasad, Actress and Mr. John Dodd, Senior Director- IQVIA flags off Racefor7 Facts about Rare Diseases · 350 million patients globally of which 70 million rare disease patients are in India · India has the world’s third highest rare disease population, more […]
Event to be held in 20 Indian cities Image credit- shuttershock.com The Organization for Rare Diseases India (ORDI), a not for profit organization committed to addressing the challenges of rare disease patients and their families, has announced the fifth edition of Racefor7, a multi-city run/walk to raise awareness for rare disease patients in India. Racefor7, symbolically […]
