ORDI urges Union govt to increase RAN grant to make treatment of rare diseases affordable

click below Link: http://www.pharmabiz.com/NewsDetails.aspx?aid=135938&sid=1 Nandita Vijay, Bengaluru Saturday, March 6, 2021, 08:00 Hrs  [IST] The Organisation of Rare Diseases of India (ORDI) has urged the Union government to increase the Rastriya Arogya Nidhi (RAN) grant of Rs. 15 lakh and allocate dedicated funds to the other income categories too to meet the unaffordable treatment costs, especially […]

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Race to raise awareness on rare diseases News Today

Click below link: https://www.nyoooz.com/news/chennai/1554708/race-to-raise-awareness-on-rare-diseases-news-today/ Race to raise awareness on rare diseases News Today | Thursday | 25th February, 2021      Chennai: In the backdrop of Rare Disease Day 2021 Organisation for Rare Diseases India (ORDI) a not for profit organisation is conducting the sixth edition of Racefor7 on 28 February. A press release said it […]

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A virtual event in namma Bengaluru to raise awareness and destigmatise rare diseases in India

Click below link: https://timesofindia.indiatimes.com/entertainment/events/bangalore/a-virtual-event-in-namma-bengaluru-to-raise-awareness-and-destigmatise-rare-diseases-in-india/articleshow/81193039.cms A virtual event in namma Bengaluru to raise awareness and destigmatise rare diseases in India In the backdrop of Rare Disease Day 2021, Organisation for Rare Diseases India (ORDI) a not for profit organization representing the collective voice of all rare disease patients in India, is conducting the sixth edition of Racefor7. It is a […]

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Spreading Global awareness on rare disease through Race for 7

Article published in “New Karnataka”  on 11th Feb 2021 about ORDI – Race for 7. This 6th edition and is Virtual this year Race for 7 is an annual mass “Awareness Run/Walk/Ride” being organized on “World Rare Disease Day” on  28th February 2021 at 6.30 am. https://registration.racefor7.com/ Click below know more information: https://www.newskarnataka.com/bangalore/spreading-global-awareness-on-rare-diseases-through-race-for-7  

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